‘One Day at a Time’ with a Trisomy 18 Diagnosis
We hadn’t planned to get pregnant again. We had already been through a difficult journey welcoming our identical twin girls at just 23 weeks
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Helping families navigate the NICU Journey, one miracle at a time.
Providing hope and community through personal and financial support for families who experience the NICU.
Support For
NICU Families
NICU parents are juggling healing from birth, navigating the routine of a NICU, all while trying to figure out how to parent their baby. This advocacy checklist can help parents understand what questions to ask, how to be a part of their baby’s care, and most importantly, how to be the best advocate for their baby alongside their NICU team.
Advocacy
Checklist
Hosted virtually, Navigate The NICU Sessions provides an opportunity for parents of children in the NICU to connect with one another. The sessions are facilitated by parents who graduated from a TIAGD partner hospital. If you would like to join a Navigate the NICU Session, email danielle@todayisagoodday.org for login information.
Navigate The NICU Sessions
Feeling alone? Overwhelmed? Stressed?
Looking to connect with other NICU families?
Supplemental Security Income:
UnitedHealthcare Children’s Foundation: https://www.uhccf.org/
Technical assistance for Montgomery County Pandemic Recovery Funds
Understanding the process or details for applying for funding can be difficult, but the Pennsylvania Health Access Network (PHAN) is here to help. Along with its partners, the Tri-County Community Network and the Philip Jaisohn Memorial Foundation, we offer assistance in a funded partnership with the Montgomery County Recovery Office. https://pahealthaccess.org/montcota/
Early Intervention. Be sure to check your state’s resources for Early Intervention Support
The NICU journey is a challenging and emotional path, where new parents must simultaneously heal from birth, adapt to the unique environmengodat of the NICU, and learn to parent under extraordinary circumstances. Recognizing these complexities, Today is a Good Day has developed a comprehensive NICU Advocacy Checklist. This essential tool is designed to empower parents, guiding you through the intricacies of the NICU experience with clarity and confidence.
This checklist offers a structured approach to understanding and engaging in your baby's care. It details key questions to ask the medical team, providing insights into the aspects of care that are crucial for your baby's wellbeing. More than just a guide, it's a resource to help parents become active, informed participants in their baby's treatment.
Most importantly, the checklist is a cornerstone for advocacy. It encourages parents to find their voice, ensuring that their concerns are heard and their baby's needs are met. By using this checklist, parents can collaborate effectively with the NICU team, building a partnership that is vital for their baby's health and development.
Breastfeeding Support
The Breastfeeding Resource Center & Pump Rentals
1355 Old York Rd, Abington, PA 19001
breastfeedingresourcecenter.org
(215) 886-2433
Michelle Hudasko, IBCLC
https://www.yourempoweredpostpartum.com/
(267) 614-0169
B4 Village
319 W Ridge Pike, Royersford, PA 19468
(484) 854-3804
Breastfeeding Support Service Abington Hospital - Outpatient
1400 Old York Road, Suite E
Abingtonhealth.org/services-specialties/womens-health/maternity/newborn-care/
(215) 481-6106
Baird Respiratory & Medical Equipment
2627 Mt Carmel Ave, Glenside, PA 19038
Philadelphia Area Support Groups:
Sharing Infant Loss - A local support group at Abington Hospital. Click here
Unite - UNITE, Inc., a non-profit organization, has been providing peer to peer grief support following the loss of a baby, including miscarriage, ectopic pregnancy, stillbirth and infant death to parents in the Philadelphia area since 1975. (In-person support groups suspended during COVID). Click here.
Maternal Wellness Center in Hatboro, PA has a “Life After Loss Support Group”, “Parenting After Loss Support Group”, and “Termination for Medical Reasons: Grief and Support Group.” Click here.
Noelle's Light supports families facing a life-threatening fetal diagnosis. The organization is rooted in hope, compassion, and the duty we all have to help others in their time of need. Click here.
The Center for Loss & Bereavement in Skippack Village, Montgomery County, provides professional counseling, support services and education for families, individuals, and organizations dealing with loss and bereavement. The Center offers a warm and safe atmosphere that allows for the expression and exploration of those thoughts and emotions associated with the grief process. Click here.
Search by zip code for general Bereavement and Grief Support Groups in PennsylvaniaInformative Websites:
March of Dimes site for Pregnancy & Newborn Loss - references and resources for bereaved couples and families who have loss a baby. Offers bilingual bereavement materials at no charge. https://www.marchofdimes.org/complications/dealing-with-grief-after-the-death-of-your-baby.aspx
MedLine Plus - site for miscarriage information (less than 20 weeks)
https://medlineplus.gov/miscarriage.html
National SIDS/Infant Death Resource Center - Use this Sudden Unexpected Infant Death (SUID) & Sudden Infant Death Syndrome (SIDS) Gateway to find resources for states, communities, professionals, and families to reduce sudden unexpected infant death (SUID) and Sudden Infant Death Syndrome (SIDS), promote healthy outcomes, and cope with grief when losses occur.
https://www.mchlibrary.org/collections/suid-sids/
Still Standing - Founded in 2012, Still Standing Magazine, LLC, shares stories from around the world of writers surviving the aftermath of loss, infertility - and includes information on how others can help. This is a page for all grieving parents. If you grieve the loss of your child, no matter the circumstances, you are welcome here.
Emotional Healing After a Miscarriage: A Guide for Women, Partners, Family, and Friends. Read this article here.
Group B Strep Association, get more information on this group here.
Heaven's Gain Ministries, get more information on this group here.
Family Resources
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